Neurodiversity
Neurodiversity is the variation and differences in neurological structure and functioning that exists among all human beings, especially when viewed as being normal and natural, rather than pathological. Neurodiversity is an umbrella term, encompassing all types of neurocognitive differences, as well as “normal” neurocognitive functioning, or neurotypicality.
Neurotypical individuals are those who are neurologically typical. Everyone is different, so it is hard to find a brain that is completely “typical”; this term is used more so for comparison sake. We compare this to neurodivergent. Neurodivergent individuals have brains that function differently from the typical; they may have some form of neurodivergence. When talking about a group of people, including neurodivergent or neurodivergent and neurotypical individuals, we may describe the group as neurodiverse.
The concept of neurodiversity is not a theory, perspective, belief, or political position; it’s a fact – it’s easy to accept the fact that everyone has different brains, or that there is diversity amongst our brains. However, not everyone realizes that neurodivergent individuals can and should be accepted as they are, nor do they see the inequities in social dynamics for this marginalized group. For this reason, the Neurodiversity Movement has been growing considerably. The Neurodiversity Movement is a cultural and human rights movement lead by autistic, neurodivergent, and other disabled people with the end goals of acceptance of neurological differences, autism/neurodiversity acceptance, self-determination, autonomy, the end of discrimination, equitable inclusion, and equal opportunity.
Paradigms & Disability Models Explained
To help explain some of the foundational underpinnings of the neurodiversity movement, it helps to understand the difference between the Pathology Paradigm & the Neurodiversity Paradigm, as well as the Medical Model of Disability & the Social Model of Disability.
Pathology Paradigm
There is only one “right” or “normal” kind of brain.
If you brain does not fit into “normal”, there is something wrong with you.
The Pathology Paradigm is unfortunately the dominant perspective in today’s society and educational system.
The Medical Model of Disability
A person is disabled by the way in which their body or mind is deficient or abnormal.
Disabled people are a broken variety of human; they need to be fixed, cured, or prevented. Only neurotypical humans are valid.
Disabled people need others to make decisions for them, and are only receivers of help.
Neurodiversity Paradigm
Neurodiversity is a natural and valuable form of diversity.
There is no one “right” or “normal” kind of brain.
The current societal dynamics are not accepting of neurodivergent people.
The Social Model of Disability
A person is disabled by society’s and their environment’s barriers.
Disabled people are a normal variation of human; they should have equal rights and access to society, without being “fixed”.
Disabled people are inherently equal, and thus have a right to autonomy and self-determination.
Overall, the pathology paradigm purports that something is wrong with neurodivergent people and they need to be fixed, whereas the neurodiversity paradigm encourages acceptance of all individuals as they are. Similarly, the medical model of disability states that an individual is disabled by their body, whereas the social model of disability states that a person is disabled by their environment and society.
When we view neurodivergencies through the neurodiversity paradigm rather than the pathology paradigm, and from the social model standpoint rather than the medical model, it can open up a big shift in our perception of them. Although this can be applied across neurodiversity, we are going to focus on autism.
Most people are first taught or provided with a definition of autism similar to this one:
Autism is a developmental disorder characterized by difficulty with social interaction and communication, and restrictive & repetitive behaviors.
But what if we use this definition?:
Autism is a developmental disability that affects how an individual experiences and thus interacts with the world around them.
We can adopt the viewpoint that autism is just a difference. There is nothing wrong with autistic people, they are just different.
Autism
Autism is a developmental disability that affects how an individual experiences and thus interacts with the world around them. Autistic people have differences in their sensory system and sensory perception. Due to the difference in input that this causes, the information is then perceived and processed differently, and therefore the output, or how the autistic person thinks, feels, communicates, socializes, moves, and otherwise behaves, is also different. However, that doesn’t mean that they do these things incorrectly.
We call autism a developmental disability because it is present when someone is born and becomes evident as an individual develops in childhood. Autistic people are born autistic and will be autistic for their entire lives; it is their neurotype. An autistic person never stops being autistic. Autism is a disability because the society has not set up the world in a way that it can be easily accessed by autistic people. The environmental barriers are what cause autistic people to be disabled.
Due to all these differences that can occur, there is no one way to be autistic. All autistic individuals experience autism differently. This is why autism is called a spectrum. However, no matter how an individual’s autism presents, everyone deserves understanding and acceptance.
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Autistic people have some differences in how they think and how their brain works:
Special Interests - These are interests related any topic that are very important to the autistic individual! The autistic person may know a lot of information about that topic. There are many kinds of special interests – some may even seem strange to you. Whatever the interest, it should be embraced because it is something that makes the autistic person happy!
Monotropism – This is a flow state that autistic people can get into that helps them to focus on things they like.
Executive Functioning Differences - This involves skills such as planning, organization, and starting and stopping tasks. It may appear to be laziness, but it is not the same thing. If someone is experiencing executive functioning difficulties, they may want to do a task, but can’t. This is an area in which sometimes autistic people need extra support.
Attention to detail - Autistic people often notice things that others don’t.
Good memories - Autistic people may remember small details from their lives or many facts related to their special interest!
Like routine and dislike change - This helps autistic people know what to expect and help make sense of their life. It can help with anxiety as well.
Black and White thinking - To autistic people, many things are either ‘good’ or ‘bad’, or ‘right’ or ‘wrong’. They may have difficulty thinking in the in-between or gray zone.
Learning differences - Autistic people may learn things in a different order, may be really good at some skills but bad at others, may learn some things really slowly but some things really quickly, or may need to learn something more than once. As long as the autistic person is supported in the right way, they will be able to learn and grow.
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Because of differences in perception, autistic people may have some differences in how they feel things and experience emotions:
Emotions - Autistic people can feel emotions just like neurotypical people, but they may express their emotions in different ways. For example, they may use different facial expressions or body language than a neurotypical person. They also may feel their emotions more strongly or completely, or not be able to name or identify the emotion they are feeling (alexithymia).
Empathy - Again, even though autistic people might not show empathy in the same way, they definitely feel empathy! Many autistic people actually feel too much empathy and can’t turn it off (hyper-empathy).
Anxiety - Unfortunately, many autistic people also feel a lot of anxiety, again due to how society views and treats autistics and the barriers they face in their environment. Many things can cause them to feel anxious, even if it is something you don’t think is a big deal. It’s important to support them when they are feeling anxious!
Meltdowns & Shutdowns - These happen when an autistic person can’t control their feelings and when they get too stressed, but they don’t happen on purpose. They aren’t the same as tantrums, and autistic people can’t control when they happen. Meltdowns may involve crying, screaming, losing control of their body, or running away. On the other hand, shutdowns cause the autistic person not be able to do anything. These feel very scary to the autistic person.
Self-Regulation – When autistic people are feeling an emotion or sensation, they may have difficulty modulating how they feel because they often feel so strongly.
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Autistic people have some different ways of communicating they may use, that may be misinterpreted by neurotypical people.
Speech & Language - One way that some autistic people communicate is through speaking, just like anyone else. However, they may use language differently than neurotypical people, and are more likely to also present with speech and language disorders. It is important to remember that there are other ways to communicate besides speaking, too, and they should all be listened to.
Echolalia – Echolalia is repeating what you have heard, either immediately or delayed. Autistic people use echolalia to communicate, especially when they are unable to make their own sentences. This is often dismissed as non-communicative, but it’s important to listen to it to figure out what your child may be saying.
Scripting – Scripting is simply preparing what you are going to say ahead of time. Everyone scripts sometimes, but autistic people tend to do it more often and have longer scripts.
Non-speech communication - Speaking can be difficult for some autistic individuals. They don’t always have good control over their bodies and muscles, and speaking takes a lot of fine motor control. Some people may be able to speak sometimes, but not other times. These people can communicate in other ways besides speech. Most of these individuals prefer to be called “non-speaking” rather than “non-verbal”, which implies they don’t use or understand language.
Behavior – If an individual does not know how to express what they are feeling, or cannot express it at that time, they may act in certain ways. You need to learn how to interpret your child’s behavior to try to understand what they are communicating.
Augmentative and Alternative Communication (AAC) - AAC is a way that non-speaking people, or people who have difficulty speaking sometimes, can communicate. There are many forms of AAC, and they are all valid.
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Rather than expecting autistics to change or mask their social skills to fit in with allistics, allistics should take the perspective of autistic people and learn about their social skills as well. Here are some autistic social skills that you may see:
Infodumping – This is a form of monologuing in which the autistic person speaks at length about a topic. This is a way that autistic people relate to each other rather than exchanging small talk. Often autistic people will take turns Infodumping at each other, demonstrating longer conversational turns than the short ones that allistics are used to.
Empathy – When an allistic person is sharing something about themselves, such as a problem they are having, autistic people often will reply by sharing their own related story. Allistics may perceive autistics to be self-centered when doing this, but really it the autistic’s way to show they relate to and understand what you are saying. Conversely, when an allistic person is having a problem, rather than acting empathetically in the allistic way, an autistic person may instead work to solve whatever problem they are having.
Literal, Direct, & Honest – Unlike allistics, autistic people tend to say what they are thinking and what they mean. Allistic people may see this as rude, whereas autistics may see allistic communication as confusing.
Parallel Play – Autistic people may prefer to have social time with others by engaging in their own interests in the same vicinity as them. They may not want to play in the same way that neurotypical children play with each other, and this is okay!
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Sensory differences are one of the biggest differences experienced by a lot of autistic people:
Hyposensitivity and hypersensitivity - Many autistic people have senses that are weaker or stronger than what neurotypical people experience. This is what causes autistic people to actually experience the world differently.
These differences not only can affect the 5 sensory systems that most people are familiar with (vision, touch, hearing, smell, and taste), but also the vestibular sense, proprioceptive sense, and interoceptive sense.
These sensory differences can vary within the person by sense, by situation, or by the day.
Sensory Overload – Sensory overload is when an autistic person’s senses get overwhelmed. It can cause a lot of anxiety, or even a meltdown or shutdown. It is important to remember that when this is happening, your autistic child is not just overreacting to sensory stimuli that are no big deal. For your child, their brain actually perceives the stimuli differently, and they even perceive them as painful.
Stimming - Stimming refers to repetitive movements and can include many different types of stims. Stimming is important because it helps autistic people balance out their senses, show how they feel, and focus. Even non-autistic people stim sometimes. It is important not to force an autistic person to stop stimming!
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Autistic people often have some traits that have to do with movement or motoric differences. For some autistic people, their motor differences may be very mild, but other autistic people may have big differences.
Gross motor skills – Autistic people may have differences in the big movements they make. This can be evident when we observe autistic people walking, as they may have an atypical gait.
Fine motor skills – Fine motor skills are the smaller movements that people make. Differences in fine motor skills can be evident in autistic people’s handwriting skills.
Proprioception – Our proprioceptive sense is one of our sensory systems, which allows us to know where our body is in space. Autistic people have differences in sensory systems, and differences in proprioception can lead to poor hand eye coordination or clumsy movements.
Posture – A lot of autistic people hold their bodies in ways that are different than how typical people do. They may appear to slouch, or sit differently in chairs.
Body Control – Some autistic people may have dyspraxia or apraxia, which can cause them to have difficulty controlling their body. This can also impact an individual’s speech. Speaking takes very coordinated motor movements. Due to motor differences in autistic individuals, some people may be non-speaking, and be better able to communicate using alternative methods.
What Autism is NOT
• Autism is not a disease. It’s also not something that can or should be “cured”.
• Autism does not cause intellectual disability or learning disability. Autistic children can learn just like all people do when well-supported.
• Autism doesn’t cause deficits in social skills or communication. It just causes differences in these skills (The Double Empathy Problem & Diversity in Social Intelligence).
• Autism doesn’t cause behavior problems. If a student is having a perceived behavioral problem, or a meltdown or shutdown, it typically means there is a problem in their environment that needs to be fixed.
The Autism Spectrum
Most people think of autism as a linear spectrum, from less autistic to more autistic. However, this is inaccurate. The Autism Spectrum is more like this:
Autistic individuals may vary more or less from neurotypicals in each different area. Because society is not set up for autistic people, they may require more support in each area, based on how much they differ from the “norm”. Their needs in each area may vary from day to day or from situation to situation. Because there is so much variety from area to area, we cannot put autistic individuals on a linear spectrum like the first one – they may have high needs in one area but low needs in another, and their needs may change over time.
For this reason, we don’t use functioning labels. When describing an autistic individual, it is better to talk about what they are good at and what kinds of accommodations they may need.
Reframing Thoughts & Language
Accepting and appreciating autism involves that we reframe our thoughts about it. Little by little, the Neurodiversity movement is helping society to reframe how they view autism and other disabilities.
However, many professionals have only been educated using the medical model of disability, and the pathology paradigm. Along with autism “charities” that profit off of fear-mongering, and the long history of autism researchers basing their work off false assumptions, we’ve really ended up in a place where society as a whole views autism as something undesirable. This stigma makes parents fearful about autism.
This is why we have to work hard to change this prevalent viewpoint. How we think and talk about autism has a significant impact on how autism is viewed, and thus on autistic people themselves. Autistic people are speaking out and advocating to change this narrative, and we need to listen to them and reframe our thoughts and language appropriately.
Identity First Language vs. Person First Language
Anyone that went to school for any healthcare or education-related fields was probably taught the importance of using person-first language. In the case of autism, someone who uses person-first language would say “person with autism”, so as to remind everyone that the individual is a person and their “disorder” should be considered secondary, like an accessory, something that can be removed, or something that shouldn’t define the individual. The “with autism”, “has autism”, or “on the autism spectrum” is all language separating autistic people from autism.
But autism is not something that autistic people need to be separated from. It is not something bad – it is an actual state of being that shapes every part of who we are. And we should not have to remind everyone that autistic people are in fact people. For these reasons, the autistic community vastly prefers the use of identity-first language: “autistic person”. Please use identify-first language to help reduce the stigma surrounding autism.
Puzzle Piece vs. Infinity Sign Symbolism
We have all seen the puzzle piece symbol to represent autism. However, what many people don’t know is the troubling history behind it. The puzzle piece logo was first used to represent autism in 1963 by the National Autistic Society in the UK. The original symbol also had a picture of a crying child inside it, to represent the sadness and burden of autism. Now, many people still think of autistic individuals as being puzzling, having a missing piece, or being an unfinished puzzle - one that needs solved, or cured. For these reasons, the autistic community regards the puzzle piece as a hate symbol.
Instead, the autistic community embraces an infinity sign to represent autism. A gold infinity sign is used specifically for autism and a rainbow infinity sign is used as a representation of neurodivergence. The symbolism of the infinity sign is that the autism spectrum is not linear, and that each autistic individual has endless possibilities and, so often, untapped potential. Please use the infinity sign to represent autism to show your support for autism acceptance.
Co-Occurring Conditions
Some of the differences that are present in some autistic people are actually the result of co-occurring conditions. That is, separate conditions that occur alongside autism. These are often lumped in with autism, and are under-diagnosed.
Some commonly co-occurring conditions are: ADHD, Apraxia/Apraxia of Speech, Dyspraxia, OCD, Anxiety, Intellectual Disability, Learning Disability, Tourette’s Syndrome, Epilepsy, Language Delay, digestive issues, sleep issues, and many more. Autistic people may also present with things such as synesthesia, hyperlexia, executive dysfunction, alexithymia, or demand avoidance, which are not really diagnosed “disorders” independently, but rather are traits, and can occasionally be seen in non-autistic people as well.
It’s helpful to remember that although any of these can co-occur with autism, they’re not autism in and of themselves.
Autism Strengths & Challenges
Every autistic person is unique and has their own strengths and challenges just like any other person. However, as we reframe our perspective of autism away from a deficit based model, it is important to recognize that autistic people may possess some certain strengths along with the challenges they may face. Here are some examples:
Strengths: Honest, Strong Sense of Justice, Good Memory, Attention to Detail, Ability to Hyperfocus, Highly Empathetic
Challenges: Self-Regulation, Executive Dysfunction, Sensory Overload, Fine Motor Skills, Communicating with Allistics, Self-Injurious Behaviors
Although we can see that autistic people have strengths along with their challenges, we still need to remember that autism is a disability. Because society is set up for neurotypical people, autistic people are disabled by their environmental and the societal barriers.
For this reason, autistic people often need support. As a parent, you obviously want to help your child with their challenges and support them however they need it. There are two ways to approach this:
1.The Pathology Paradigm and the Medical Model of Disability
2.The Neurodiversity Paradigm and the Social Model of Disability